This post shares a recent interview with Dr. Neil Nathan MD on MCAS. My friend Shirley Plant interviewed Dr. Nathan on YouTube, and her insightful questions provide a succinct explanation of what MCAS is, and how to treat it. I’ve listened to Dr. Nathan’s talks on several MCAS summits but this interview was so concise and helpful!
Here’s the interview
Table of Contents
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What is MCAS?
Mast Cell Activation Syndrome (MCAS) is a chronic condition that affects all organ systems. It can cause severe, disabling symptoms every day, including potentially fatal anaphylaxis. MCAS often occurs with other chronic conditions like Ehlers-Danlos Syndrome (EDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Managing MCAS is challenging because many healthcare providers are unaware of it, and diagnostic tests can be unreliable. Treatments involve using antihistamines, mast cell stabilizers, and avoiding triggers. Check out this post on how to manage MCAS.
The bucket theory
The bucket theory simplifies understanding symptom reactions with MCAS. Imagine your body as an empty bucket you don’t want to overflow. Reactions to various stimuli fill the histamine bucket at different rates, forming the total histamine level (how full your bucket is). More histamine means more symptoms. By managing triggers, reducing exposures, and taking medications and supplements, you can control your bucket’s level.
Know your typical symptom progression
Knowing your symptom progression in a symptom flare is the key to developing your rescue plan. This post discusses how to recognize your symptom progression so you can be prepared to address those symptoms.
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Nervous system retraining therapies for MCAS
Dr. Nathan’s interview mentions using nervous system retraining therapies for MCAS. There are two types of nervous system retraining: top-down, and bottom-up, as explained in this post. My favorite nervous system retraining therapy is the Safe and Sound Protocol.
Sign up for the SSP!
The Safe and Sound Protocol (SSP) is a listening therapy based on Polyvagal Theory that helps heal nervous system regulation. Many people with MCAS have nervous system dysregulation stemming from infections, toxic exposures, concussions, and trauma. The SSP is an easy-to-use app where you listen to specially filtered music for 30 minutes each day for a 5-hour cycle. Studies show the SSP has a profound effect on mental health and chronic conditions
You can sign up for the SSP here!
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Rocks and Roots chronicles my journey solo backpacking the Superior Hiking Trail and overcoming nervous system dysregulation, gut dysbiosis, and Mast Cell Activation Syndrome symptoms to hike 328 miles successfully.
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Healy is an individualized microcurrent device I use to reduce inflammation. Check out this post for more about Healy.
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Disclaimer
The preceding material does not constitute medical advice. This information is for information purposes only and is not intended to be a substitute for professional medical advice, diagnosis, cure or treatment. Always seek advice from your medical doctor.